Category Archives: My Life with Myasthenia Gravis

Yes, I said it! People choose not to make lemonade! Life is not always bubble gum and rainbows & I’m guessing if you are reading this you already know it. The God of the Bible, in whom I worship and … Continue reading →

This blog post is dedicated to all the hard working staff I call my hospital family at Augusta University Medial Center 3West Neuro ICU.  Let me start with this: I’m currently in the hospital again, the second time this month. … Continue reading →

This past week has been a new low for me in my fight against this dread disease-Myasthenia Gravis. By low I mean I have never been this sick in my life. I spent the last six days in ICU running … Continue reading →

So there are times in a parent’s life that children tend to cause a sudden shock to our systems. You know what I’m talking about right? For instance, you unexpectedly get pregnant when you have a six year old and … Continue reading →

Through my battle with Myasthenia Gravis there are things I don’t like to share. Things I don’t want people to see or hear but, this week has been rough. One of the symptoms that I struggle with is a feeling … Continue reading →

God gifted me with the most wonderful, loving, hot tempered, hard headed handful of a father. I can say that because I’m just like him in a lot of ways. He loved with every part of his being, he got … Continue reading →

Two years ago today my life changed in ways that I would never have imagined. I was sidelined with a diagnosis that has literally stopped me in my tracks on more than one occasion. Fifteen to be exact within those … Continue reading →

I wanted to take a chance to reflect on 2018 and what it has brought me and my family. Here are a few highlights: JANUARY: Kathryn and Jaron celebrated 1 year of marriage! They made it through the hardest part … Continue reading →

This week has been one of horrific news everywhere I’ve turned: Mass shootings, car wrecks, indictments, attacks, a friend’s health news, loss and grief. It seems there is no good news to hear. And as if the news on social … Continue reading →

I will not lie, have had a rough couple of weeks. Last week I found out at the very last minute that my insurance company had decided that it would not pay for the medication I take before my infusions … Continue reading →