This past week has been a new low for me in my fight against this dread disease-Myasthenia Gravis. By low I mean I have never been this sick in my life. I spent the last six days in ICU running fever, having horrible headaches and the nausea was off the chain. Not a good combination to say the least. I was off and on the Non Invasive Ventilator at first. Having horrible headaches and no one was sure why. I honestly thought I was going to die. I know I scared my family half to death but especially Tal. Days passed and he sat in the recliner in my room with the TV off, at the times I was awake he was there to tell me he loved me. I knew he loved me but this was beyond anything I have seen. My head was pounding so bad that I could hardly function. I was physically miserable. I thanked God for My family and told him whatever His Will was I was ok with it. I know He has plans for me because I am still here. Mama brought me home last night and I’m still in bed. My final diagnosis was aseptic meningitis – google that and scratch your head like i did. Basically i had a reaction to my IVIG, the monthly infusion i take and no one knows why.
Today I have spent the day in bed because I’m sore from the lumbar punctures and the blood patch they did yesterday to seal off a leakage caused from the lumbar puncture.
The Bible never says it will be easy to be a Christian, we all will have battles. So here I am still fighting, until the good Lord says it’s my time to stop.
Thank you for your prayers, texts, and calls. I apologize if I haven’t responded or they didn’t make sense. All I can say is I was not always in my right mind when I responded.
All my love ~ Melynda