Category Archives: My Life with Myasthenia Gravis

When there are no words…

This past week has been a new low for me in my fight against this dread disease-Myasthenia Gravis. By low I mean I have never been this sick in my life. I spent the last six days in ICU running … Continue reading

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God’s Grace & Mercy

Every morning I pray for my family. I call them ALL out by name: Tal, Adam, Kathryn, Jaron, Mama, Marie, Wyatt, Jenni, Wyatt, Evan, Jody, Dena, Neeley, Cash, Carlin, and Russell for The Lord to keep them safe while they … Continue reading

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Thank you…

So, if you stood in the gap for me and mentioned my name in prayer to our Almighty God on Tuesday morning I thank you. It’s a long story so here it goes. I have been doing great! So much … Continue reading

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Celebrating ❤️

Today most people are celebrating Valentine’s Day by going out to dinner or with flowers and chocolates; maybe even with jewelry but I chose take out pizza at home with my family. I’ve not felt good this week I have … Continue reading

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9 months

Nine months is a long time especially if you are pregnant which I am not! It’s three quarters of a year and this past weekend I celebrated nine months of being hospital free! Woo Hoo!!! Nine months I’ve had at … Continue reading

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2017 is in the books, bring it on 2018!

For our family 2017 has had a lot of hills and valleys. Our daughter got married, our son started his senior year in high school, we buried Tal’s Big Mama and I have fought Myasthenia Gravis with every fiber of … Continue reading

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Here’s What I Know…

I’ve had a good bit of time to think and pray about this blog post. I’ve had several topics come and go but this one has stuck with me. Whether it has been mentioned in sermon content from my pastor, … Continue reading

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The If’s Have Had Me…

Do you ever live life wondering ; “what if?” “only if?” “I should have…” “Lord, if you, I will…” ?  You are not alone! This chick does it all the time.  You know why? I am imperfect, faulty, whatever you … Continue reading

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Celebrating One Year…

June 22, 2016 was a day I will never forget. I was driving to work just like every other day and I took a sip of tea as I was waiting to get on I-20. In that instant I knew … Continue reading

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Turning on a dime….

Myasthenia Gravis is a tricky disease no doubt about it. I was not feeling well Friday just simply worn down. Saturday morning I woke up after a good rest and still felt worn down. I had two picnics – one … Continue reading

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