I was diagnosed June 22, 2016 with Myasthenia Gravis. A disease I remembered the name of from nursing school. I graduated in 1990 so I have had to do a lot f digging and reading and question asking to figure out what to expect. With that being said, the best people to get information from are those that have it & there are not a lot of “snowflakes” as they have been labeled around me but thank goodness for Facebook because I don’t feel like I am alone in this fight. Yesterday I woke up to leg weakness. Not just my average leg weakness but when I stood to get out of bed I wasn’t sure I could make the 15 steps to the shower. I trudged on but couldn’t pick my foot up high enough to step out of the shower. Strange was my first thought, then what in the world is happening? I went to dry my hair in which I do the whole flip it over, blow it dry, flip it back, blow the rest dry. I couldn’t flip back over very easily- Ok, now this is new. It took me 1 hour and 45 minutes to do a 40 minute routine. Now I felt like couldn’t hardly walk. I was also very nauseated. Since it’s all new to me I have to decide what to do because going to see my PCM is not that simple. I decided I needed to either go to the ER or call my Neurologist. I can’t just take something for nausea and go back to bed. I have literally been in bed all weekend with the exception of maybe 12 hours total: So off to the ER I go. Sure glad I made it because, by the time we took the hour drive to get there I couldn’t walk on my own and my breathing was effected. Who would have thought some weakness and nausea started it? My body works in a totally different way now and I have to figure out the signs. So here I sit in ICU at AUHealth getting the best care from the best group of nurses around. They know their stuff and are compassionate toward folks with MG. They treat folks from all around so they know and are a wealth of information for me. It’s kind of like a homecoming reunion! 😂😂
Being a Christian is the exact same way, once Christ has come into our lives we are not instantly fixed. Our sin is embedded in us and it is our journey to a closer relationship with Him that we come to see the signs and symptoms of that sin. We work to heal it out of our lives. Do we always get it right the first time? I don’t, that is for sure but, I do realize it. I also have a wonderful church family that helps me to see it and fix it. I have a wonderful caring pastor that preaches it. His sermons are not the feel good, life is always roses and rainbows but, learning, teaching biblical sermons. For that I am thankful and have learned so much!! Those “older folks” at church that some people don’t get tot know well ours are the caring, praying, God-fearers that you can learn from and love on – mine also love harder than any others. It’s also not just the ones at my church either. There are other churches in our community that are praying for me and sending me cards of encouragement. Nothing is a pick me up like knowing others are praying for you. It’s easy to get discouraged in any situation but remember it’s all a learning process. I’m ever thankful for the people God has placed around me. They make me a better person. I know some people don’t think you need to go to church to be a Christian but I absolutely do not feel that way. How do you grow and learn as a Christian especially if you are hanging with worldly people at work during the week? It’s easy to get your light blown out by the world. I encourage you to find a church home. Get to know a small group of people you have something in common with. A church that has outreach so you can know the excitement of seeing a new Christian grow and learn from you and your mistakes. God doesn’t allow us to go through tests without allowing us to learn and in turn we can share with others that have the same struggles.
To God be the glory for my current hospital stay. Thank you Lord for giving me the knowledge to know where I needed to be and what I needed to do. Have a great day wherever you are! I am right here in ICU – talking and praying for these sweet caregivers one by one.